The number of adults with congenital heart disease (ACHD) is steadily growing. Congenital heart disease is the most common cardiac problem in pregnant women in the developed world. Many cardiologist encounter patients with congenital heart disease. The purpose of this internet survey was to assess the awareness, knowledge and attitude of Israeli adult and pediatric cardiologists regarding Congenital Heart Disease in Adults.
Electronic survey was sent to all members of the Israeli Heart Association and the Israeli Pediatric Cardiology association.
One hundred responded; 68 adult cardiologists, 27 pediatric cardiologists and 5 with combined practice. Most (80%) see no or only a few ACHD patients. A small minority (15%) felt they have adequate training in ACHD, most (69%) stated they have partial and 16% none.
Regarding whom to refer to ACHD consultation, 33% stated that all ACHD patients should be referred, 38% stated that only patients with moderate-severe disease, and 27% stated that referral should be according to clinical judgement. Only 18% of cardiologist with
Regarding referral of pregnant women with CHD to ACHD centers: 53% would refer all patients, 29% only women with moderate-severe disease, and 16% according to clinical judgement.
All pediatric cardiologists thought that patients with severe CHD should be care for in ACHD centers. Most, but not all adult cardiologists shared this view: 93% for cyanotic heart disease and single ventricle. Sixteen percent of adult cardiologists believed Tetralogy of fallot patients can be cared for by general cardiologists.
The low response rate and the survey finding emphasize the need for better communication and awareness regarding the growing population of ACHD.